Joint Programming Initiative

More Years, Better Lives

The Potential and Challenges of Demographic Change

Disability Health Survey
Enquête Handicap Santé

Topic
Health and Performance
Social Systems and Welfare
Work and Productivity
Housing, Urban Development and Mobility
Wellbeing
Relevance for this Topic
Country France
More Topics

Governance

Contact information

Etienne Debauche / DREES (Direction de la recherche, des études, de l’évaluation et des statistiques)
Ministère des Affaires sociales et de la Santé
14, avenue Duquesne
75350 PARIS 07 SP
France
Phone: (+33) 01 40 56 88 22
Email: etienne.debauche(at)sante.gouv.fr

Timeliness, transparency

All data from the 2008-09 survey are available. The next wave is planned for the spring of 2015, with the first results being released at the end of 2015 and data becoming available in 2017 (the linkage with the administrative data files takes time).

Type of data


Survey

Type of Study

Cross-section, occasional

Data gathering method

Face-to-face interview (CAPI, PAPI)

Self-administered questionnaire

Type of data


Survey

Type of Study

Cross-section, occasional

Data gathering method

Face-to-face interview (CAPI, PAPI)

Self-administered questionnaire

Type of data


Survey

Type of Study

Cross-section, occasional

Data gathering method

Face-to-face interview (CAPI, PAPI)

Self-administered questionnaire

Type of data


Survey

Type of Study

Cross-section, occasional

Data gathering method

Face-to-face interview (CAPI, PAPI)

Self-administered questionnaire

Type of data


Survey

Type of Study

Cross-section, occasional

Data gathering method

Face-to-face interview (CAPI, PAPI)

Self-administered questionnaire


Access to data


Free downloadable files from the Centre Quételet (http://www.reseau-quetelet.cnrs.fr/spip/) (2008-09 data).

Conditions of access


Free access with standard procedure (reference to the Insee/Drees in publications, communication of publications...).


No delay.


Individual data.


SAS


The data base is in French.

Access to data


Free downloadable files from the Centre Quételet (http://www.reseau-quetelet.cnrs.fr/spip/) (2008-09 data).

Conditions of access


Free access with standard procedure (reference to the Insee/Drees in publications, communication of publications...).


No delay.


Individual data.


SAS


The data base is in French.

Access to data


Free downloadable files from the Centre Quételet (http://www.reseau-quetelet.cnrs.fr/spip/) (2008-09 data).

Conditions of access


Free access with standard procedure (reference to the Insee/Drees in publications, communication of publications...).


No delay.


Individual data.


SAS


The data base is in French.

Access to data


Free downloadable files from the Centre Quételet (http://www.reseau-quetelet.cnrs.fr/spip/) (2008-09 data).

Conditions of access


Free access with standard procedure (reference to the Insee/Drees in publications, communication of publications...).


No delay.


Individual data.


SAS


The data base is in French.

Access to data


Free downloadable files from the Centre Quételet (http://www.reseau-quetelet.cnrs.fr/spip/) (2008-09 data).

Conditions of access


Free access with standard procedure (reference to the Insee/Drees in publications, communication of publications...).


No delay.


Individual data.


SAS


The data base is in French.


Coverage


An initial survey, known as the Handicap-Incapacity-Dependence, was carried out between 1998 and 2001, but the Disability Health Survey conducted in 2008-09 was quite different, especially because the international definition/classification for handicaps greatly changed during the 2000s. In 2008-09, three samples were surveyed: - 30,000 individuals living in an ordinary household (8,000 individuals were aged 60 and over); - 9,000 people living in specialized institutions (including 3,000 people living in Old Age & Elderly Care Homes); - 5,000 informal caregivers (mean age= 58 years old). In 2015, another survey will be conducted with very similar methodology and questionnaires, but with a restriction to individuals aged 60 and over (CARE survey: Capacity, Help, Resources of Seniors). The three sample design will be reproduced: - 11,000 individuals living in an ordinary household, aged 60 and over; - 3,000 people aged 60 and over living in specialized institutions; - 5,000 informal caregivers (mean age= 58 years old).


2008-09


To select people with disabilities, an exploratory survey is required: in 2008, about 140,000 people were briefly surveyed (VQS survey: “Vie Quotidienne et Santé”=daily life and health) to build a base for sampling. This base was used to randomly select people with no/light/severe disabilities, with an overrepresentation of the last two categories. The same procedure will be used in 2014/2015 with a restriction to people aged 60 and over.


national


age 18 and over


Each of the three samples is representative of its specific target population (after weighting the data): disabled people living in ordinary households, disabled people living in a specialised institution, informal caregivers.


Regarding health & performance, the data allow for a detailed study (of disabled people, but also of informal caregivers, regarding their quality of life, their social participation, their occupational status, etc.). The data also allow for original insight regarding the way disabilities are managed (insurance benefits, formal/informal care, specific equipment in the house/at work, etc.), as well as regarding their consequences (in terms of restrictions to social participation/work/use of public transportation, etc.). Such information is related to the topics Social Systems and Welfare, Work and Productivity, Housing and Mobility.


Soulier N, Aider un proche âgé à domicile: la charge ressentie, Etudes et résultats, n°799, 2012 (http://www.drees.sante.gouv.fr/IMG/pdf/er799.pdf
). Davin B, Paraponaris A, Verger P. Demographic and socioeconomic factors associated with needs for home assistance among community-dwelling elderly: a study from the French Home Survey Handicaps-Disabilities-Dependence]. Rev Epidemiol Sante Publique. 2005 Nov;53(5):509-24. Paraponaris A, Davin B, Verger P. Formal and informal care for disabled elderly living in the community: an appraisal of French care composition and costs. Eur J Health Econ. 2012 Jun;13(3):327-36. doi: 10.1007/s10198-011-0305-3. Epub 2011 Mar 13. Palazzo C, Ravaud JF, Trinquart L, Dalichampt M, Ravaud P, Poiraudeau S. Respective contribution of chronic conditions to disability in France: results from the national Disability-Health Survey. PLoS One. 2012;7(9):e44994. Epub 2012 Sep 14.

Coverage


An initial survey, known as the Handicap-Incapacity-Dependence, was carried out between 1998 and 2001, but the Disability Health Survey conducted in 2008-09 was quite different, especially because the international definition/classification for handicaps greatly changed during the 2000s. In 2008-09, three samples were surveyed: - 30,000 individuals living in an ordinary household (8,000 individuals were aged 60 and over); - 9,000 people living in specialized institutions (including 3,000 people living in Old Age & Elderly Care Homes); - 5,000 informal caregivers (mean age= 58 years old). In 2015, another survey will be conducted with very similar methodology and questionnaires, but with a restriction to individuals aged 60 and over (CARE survey: Capacity, Help, Resources of Seniors). The three sample design will be reproduced: - 11,000 individuals living in an ordinary household, aged 60 and over; - 3,000 people aged 60 and over living in specialized institutions; - 5,000 informal caregivers (mean age= 58 years old).


2008-09


To select people with disabilities, an exploratory survey is required: in 2008, about 140,000 people were briefly surveyed (VQS survey: “Vie Quotidienne et Santé”=daily life and health) to build a base for sampling. This base was used to randomly select people with no/light/severe disabilities, with an overrepresentation of the last two categories. The same procedure will be used in 2014/2015 with a restriction to people aged 60 and over.


national


age 18 and over


Each of the three samples is representative of its specific target population (after weighting the data): disabled people living in ordinary households, disabled people living in a specialised institution, informal caregivers.


Regarding health & performance, the data allow for a detailed study (of disabled people, but also of informal caregivers, regarding their quality of life, their social participation, their occupational status, etc.). The data also allow for original insight regarding the way disabilities are managed (insurance benefits, formal/informal care, specific equipment in the house/at work, etc.), as well as regarding their consequences (in terms of restrictions to social participation/work/use of public transportation, etc.). Such information is related to the topics Social Systems and Welfare, Work and Productivity, Housing and Mobility.


Soulier N, Aider un proche âgé à domicile: la charge ressentie, Etudes et résultats, n°799, 2012 (http://www.drees.sante.gouv.fr/IMG/pdf/er799.pdf
). Davin B, Paraponaris A, Verger P. Demographic and socioeconomic factors associated with needs for home assistance among community-dwelling elderly: a study from the French Home Survey Handicaps-Disabilities-Dependence]. Rev Epidemiol Sante Publique. 2005 Nov;53(5):509-24. Paraponaris A, Davin B, Verger P. Formal and informal care for disabled elderly living in the community: an appraisal of French care composition and costs. Eur J Health Econ. 2012 Jun;13(3):327-36. doi: 10.1007/s10198-011-0305-3. Epub 2011 Mar 13. Palazzo C, Ravaud JF, Trinquart L, Dalichampt M, Ravaud P, Poiraudeau S. Respective contribution of chronic conditions to disability in France: results from the national Disability-Health Survey. PLoS One. 2012;7(9):e44994. Epub 2012 Sep 14.

Coverage


An initial survey, known as the Handicap-Incapacity-Dependence, was carried out between 1998 and 2001, but the Disability Health Survey conducted in 2008-09 was quite different, especially because the international definition/classification for handicaps greatly changed during the 2000s. In 2008-09, three samples were surveyed: - 30,000 individuals living in an ordinary household (8,000 individuals were aged 60 and over); - 9,000 people living in specialized institutions (including 3,000 people living in Old Age & Elderly Care Homes); - 5,000 informal caregivers (mean age= 58 years old). In 2015, another survey will be conducted with very similar methodology and questionnaires, but with a restriction to individuals aged 60 and over (CARE survey: Capacity, Help, Resources of Seniors). The three sample design will be reproduced: - 11,000 individuals living in an ordinary household, aged 60 and over; - 3,000 people aged 60 and over living in specialized institutions; - 5,000 informal caregivers (mean age= 58 years old).


2008-09


To select people with disabilities, an exploratory survey is required: in 2008, about 140,000 people were briefly surveyed (VQS survey: “Vie Quotidienne et Santé”=daily life and health) to build a base for sampling. This base was used to randomly select people with no/light/severe disabilities, with an overrepresentation of the last two categories. The same procedure will be used in 2014/2015 with a restriction to people aged 60 and over.


national


age 18 and over


Each of the three samples is representative of its specific target population (after weighting the data): disabled people living in ordinary households, disabled people living in a specialised institution, informal caregivers.


Regarding health & performance, the data allow for a detailed study (of disabled people, but also of informal caregivers, regarding their quality of life, their social participation, their occupational status, etc.). The data also allow for original insight regarding the way disabilities are managed (insurance benefits, formal/informal care, specific equipment in the house/at work, etc.), as well as regarding their consequences (in terms of restrictions to social participation/work/use of public transportation, etc.). Such information is related to the topics Social Systems and Welfare, Work and Productivity, Housing and Mobility.


Soulier N, Aider un proche âgé à domicile: la charge ressentie, Etudes et résultats, n°799, 2012 (http://www.drees.sante.gouv.fr/IMG/pdf/er799.pdf
). Davin B, Paraponaris A, Verger P. Demographic and socioeconomic factors associated with needs for home assistance among community-dwelling elderly: a study from the French Home Survey Handicaps-Disabilities-Dependence]. Rev Epidemiol Sante Publique. 2005 Nov;53(5):509-24. Paraponaris A, Davin B, Verger P. Formal and informal care for disabled elderly living in the community: an appraisal of French care composition and costs. Eur J Health Econ. 2012 Jun;13(3):327-36. doi: 10.1007/s10198-011-0305-3. Epub 2011 Mar 13. Palazzo C, Ravaud JF, Trinquart L, Dalichampt M, Ravaud P, Poiraudeau S. Respective contribution of chronic conditions to disability in France: results from the national Disability-Health Survey. PLoS One. 2012;7(9):e44994. Epub 2012 Sep 14.

Coverage


An initial survey, known as the Handicap-Incapacity-Dependence, was carried out between 1998 and 2001, but the Disability Health Survey conducted in 2008-09 was quite different, especially because the international definition/classification for handicaps greatly changed during the 2000s. In 2008-09, three samples were surveyed: - 30,000 individuals living in an ordinary household (8,000 individuals were aged 60 and over); - 9,000 people living in specialized institutions (including 3,000 people living in Old Age & Elderly Care Homes); - 5,000 informal caregivers (mean age= 58 years old). In 2015, another survey will be conducted with very similar methodology and questionnaires, but with a restriction to individuals aged 60 and over (CARE survey: Capacity, Help, Resources of Seniors). The three sample design will be reproduced: - 11,000 individuals living in an ordinary household, aged 60 and over; - 3,000 people aged 60 and over living in specialized institutions; - 5,000 informal caregivers (mean age= 58 years old).


2008-09


To select people with disabilities, an exploratory survey is required: in 2008, about 140,000 people were briefly surveyed (VQS survey: “Vie Quotidienne et Santé”=daily life and health) to build a base for sampling. This base was used to randomly select people with no/light/severe disabilities, with an overrepresentation of the last two categories. The same procedure will be used in 2014/2015 with a restriction to people aged 60 and over.


national


age 18 and over


Each of the three samples is representative of its specific target population (after weighting the data): disabled people living in ordinary households, disabled people living in a specialised institution, informal caregivers.


Regarding health & performance, the data allow for a detailed study (of disabled people, but also of informal caregivers, regarding their quality of life, their social participation, their occupational status, etc.). The data also allow for original insight regarding the way disabilities are managed (insurance benefits, formal/informal care, specific equipment in the house/at work, etc.), as well as regarding their consequences (in terms of restrictions to social participation/work/use of public transportation, etc.). Such information is related to the topics Social Systems and Welfare, Work and Productivity, Housing and Mobility.


Soulier N, Aider un proche âgé à domicile: la charge ressentie, Etudes et résultats, n°799, 2012 (http://www.drees.sante.gouv.fr/IMG/pdf/er799.pdf
). Davin B, Paraponaris A, Verger P. Demographic and socioeconomic factors associated with needs for home assistance among community-dwelling elderly: a study from the French Home Survey Handicaps-Disabilities-Dependence]. Rev Epidemiol Sante Publique. 2005 Nov;53(5):509-24. Paraponaris A, Davin B, Verger P. Formal and informal care for disabled elderly living in the community: an appraisal of French care composition and costs. Eur J Health Econ. 2012 Jun;13(3):327-36. doi: 10.1007/s10198-011-0305-3. Epub 2011 Mar 13. Palazzo C, Ravaud JF, Trinquart L, Dalichampt M, Ravaud P, Poiraudeau S. Respective contribution of chronic conditions to disability in France: results from the national Disability-Health Survey. PLoS One. 2012;7(9):e44994. Epub 2012 Sep 14.

Coverage


An initial survey, known as the Handicap-Incapacity-Dependence, was carried out between 1998 and 2001, but the Disability Health Survey conducted in 2008-09 was quite different, especially because the international definition/classification for handicaps greatly changed during the 2000s. In 2008-09, three samples were surveyed: - 30,000 individuals living in an ordinary household (8,000 individuals were aged 60 and over); - 9,000 people living in specialized institutions (including 3,000 people living in Old Age & Elderly Care Homes); - 5,000 informal caregivers (mean age= 58 years old). In 2015, another survey will be conducted with very similar methodology and questionnaires, but with a restriction to individuals aged 60 and over (CARE survey: Capacity, Help, Resources of Seniors). The three sample design will be reproduced: - 11,000 individuals living in an ordinary household, aged 60 and over; - 3,000 people aged 60 and over living in specialized institutions; - 5,000 informal caregivers (mean age= 58 years old).


2008-09


To select people with disabilities, an exploratory survey is required: in 2008, about 140,000 people were briefly surveyed (VQS survey: “Vie Quotidienne et Santé”=daily life and health) to build a base for sampling. This base was used to randomly select people with no/light/severe disabilities, with an overrepresentation of the last two categories. The same procedure will be used in 2014/2015 with a restriction to people aged 60 and over.


national


age 18 and over


Each of the three samples is representative of its specific target population (after weighting the data): disabled people living in ordinary households, disabled people living in a specialised institution, informal caregivers.


Regarding health & performance, the data allow for a detailed study (of disabled people, but also of informal caregivers, regarding their quality of life, their social participation, their occupational status, etc.). The data also allow for original insight regarding the way disabilities are managed (insurance benefits, formal/informal care, specific equipment in the house/at work, etc.), as well as regarding their consequences (in terms of restrictions to social participation/work/use of public transportation, etc.). Such information is related to the topics Social Systems and Welfare, Work and Productivity, Housing and Mobility.


Soulier N, Aider un proche âgé à domicile: la charge ressentie, Etudes et résultats, n°799, 2012 (http://www.drees.sante.gouv.fr/IMG/pdf/er799.pdf
). Davin B, Paraponaris A, Verger P. Demographic and socioeconomic factors associated with needs for home assistance among community-dwelling elderly: a study from the French Home Survey Handicaps-Disabilities-Dependence]. Rev Epidemiol Sante Publique. 2005 Nov;53(5):509-24. Paraponaris A, Davin B, Verger P. Formal and informal care for disabled elderly living in the community: an appraisal of French care composition and costs. Eur J Health Econ. 2012 Jun;13(3):327-36. doi: 10.1007/s10198-011-0305-3. Epub 2011 Mar 13. Palazzo C, Ravaud JF, Trinquart L, Dalichampt M, Ravaud P, Poiraudeau S. Respective contribution of chronic conditions to disability in France: results from the national Disability-Health Survey. PLoS One. 2012;7(9):e44994. Epub 2012 Sep 14.


Linkage


The international comparability of collected data was quite poor in 1998-2001; it was improved in 2008-09 and even more comparability is requested for 2015.


Yes. Linkage with SNIIR-AM data, social insurances and tax collection registries.

Linkage


The international comparability of collected data was quite poor in 1998-2001; it was improved in 2008-09 and even more comparability is requested for 2015.


Yes. Linkage with SNIIR-AM data, social insurances and tax collection registries.

Linkage


The international comparability of collected data was quite poor in 1998-2001; it was improved in 2008-09 and even more comparability is requested for 2015.


Yes. Linkage with SNIIR-AM data, social insurances and tax collection registries.

Linkage


The international comparability of collected data was quite poor in 1998-2001; it was improved in 2008-09 and even more comparability is requested for 2015.


Yes. Linkage with SNIIR-AM data, social insurances and tax collection registries.

Linkage


The international comparability of collected data was quite poor in 1998-2001; it was improved in 2008-09 and even more comparability is requested for 2015.


Yes. Linkage with SNIIR-AM data, social insurances and tax collection registries.


Data quality


Important methodological changes have occurred between 1998-2001 and 2008-09, and to a lesser extent between 2008-09 and 2015. The 2015 wave will not be carried out by the Insee (depending of the Ministry of Economics), but by the DREES (Direction of Research, Studies, Evaluation and Statistics, Ministry of Health). This wave will be restricted to people aged 60 and over (except for informal caregivers), and some aspects of the 2008-09 questionnaire will be deleted (especially questions dealing with social participation).


From 1998-2001 to 2008-09, the international definition/classification of disabilities greatly changed.

Data quality


Important methodological changes have occurred between 1998-2001 and 2008-09, and to a lesser extent between 2008-09 and 2015. The 2015 wave will not be carried out by the Insee (depending of the Ministry of Economics), but by the DREES (Direction of Research, Studies, Evaluation and Statistics, Ministry of Health). This wave will be restricted to people aged 60 and over (except for informal caregivers), and some aspects of the 2008-09 questionnaire will be deleted (especially questions dealing with social participation).


From 1998-2001 to 2008-09, the international definition/classification of disabilities greatly changed.

Data quality


Important methodological changes have occurred between 1998-2001 and 2008-09, and to a lesser extent between 2008-09 and 2015. The 2015 wave will not be carried out by the Insee (depending of the Ministry of Economics), but by the DREES (Direction of Research, Studies, Evaluation and Statistics, Ministry of Health). This wave will be restricted to people aged 60 and over (except for informal caregivers), and some aspects of the 2008-09 questionnaire will be deleted (especially questions dealing with social participation).


From 1998-2001 to 2008-09, the international definition/classification of disabilities greatly changed.

Data quality


Important methodological changes have occurred between 1998-2001 and 2008-09, and to a lesser extent between 2008-09 and 2015. The 2015 wave will not be carried out by the Insee (depending of the Ministry of Economics), but by the DREES (Direction of Research, Studies, Evaluation and Statistics, Ministry of Health). This wave will be restricted to people aged 60 and over (except for informal caregivers), and some aspects of the 2008-09 questionnaire will be deleted (especially questions dealing with social participation).


From 1998-2001 to 2008-09, the international definition/classification of disabilities greatly changed.

Data quality


Important methodological changes have occurred between 1998-2001 and 2008-09, and to a lesser extent between 2008-09 and 2015. The 2015 wave will not be carried out by the Insee (depending of the Ministry of Economics), but by the DREES (Direction of Research, Studies, Evaluation and Statistics, Ministry of Health). This wave will be restricted to people aged 60 and over (except for informal caregivers), and some aspects of the 2008-09 questionnaire will be deleted (especially questions dealing with social participation).


From 1998-2001 to 2008-09, the international definition/classification of disabilities greatly changed.


Applicability


Strengths: - This survey offers a very specific point of view on both disabled people (including those living in specialised institutions) and informal caregivers. This is very complementary with other data sources, and this is quite relevant because many informal caregivers are aged 60 and over; - The 2015 wave will focus exclusively on people aged 60 and over; - The Insee is the most reliable French institute in the field of data collection and analyses; - Linkage with the SNIIR-AM database and other administrative/tax collection databases. Weaknesses: - limited comparability from one survey to the other due to changes in methodology and the questionnaire: the 1998-2001 and 2008-09 surveys can hardly be considered as two waves of the same survey, and despite increasing comparability, the 2015 survey will be quite different from the 2008-09 one; - data dictionaries and datasets are not available in English.

Applicability


Strengths: - This survey offers a very specific point of view on both disabled people (including those living in specialised institutions) and informal caregivers. This is very complementary with other data sources, and this is quite relevant because many informal caregivers are aged 60 and over; - The 2015 wave will focus exclusively on people aged 60 and over; - The Insee is the most reliable French institute in the field of data collection and analyses; - Linkage with the SNIIR-AM database and other administrative/tax collection databases. Weaknesses: - limited comparability from one survey to the other due to changes in methodology and the questionnaire: the 1998-2001 and 2008-09 surveys can hardly be considered as two waves of the same survey, and despite increasing comparability, the 2015 survey will be quite different from the 2008-09 one; - data dictionaries and datasets are not available in English.

Applicability


Strengths: - This survey offers a very specific point of view on both disabled people (including those living in specialised institutions) and informal caregivers. This is very complementary with other data sources, and this is quite relevant because many informal caregivers are aged 60 and over; - The 2015 wave will focus exclusively on people aged 60 and over; - The Insee is the most reliable French institute in the field of data collection and analyses; - Linkage with the SNIIR-AM database and other administrative/tax collection databases. Weaknesses: - limited comparability from one survey to the other due to changes in methodology and the questionnaire: the 1998-2001 and 2008-09 surveys can hardly be considered as two waves of the same survey, and despite increasing comparability, the 2015 survey will be quite different from the 2008-09 one; - data dictionaries and datasets are not available in English.

Applicability


Strengths: - This survey offers a very specific point of view on both disabled people (including those living in specialised institutions) and informal caregivers. This is very complementary with other data sources, and this is quite relevant because many informal caregivers are aged 60 and over; - The 2015 wave will focus exclusively on people aged 60 and over; - The Insee is the most reliable French institute in the field of data collection and analyses; - Linkage with the SNIIR-AM database and other administrative/tax collection databases. Weaknesses: - limited comparability from one survey to the other due to changes in methodology and the questionnaire: the 1998-2001 and 2008-09 surveys can hardly be considered as two waves of the same survey, and despite increasing comparability, the 2015 survey will be quite different from the 2008-09 one; - data dictionaries and datasets are not available in English.

Applicability


Strengths: - This survey offers a very specific point of view on both disabled people (including those living in specialised institutions) and informal caregivers. This is very complementary with other data sources, and this is quite relevant because many informal caregivers are aged 60 and over; - The 2015 wave will focus exclusively on people aged 60 and over; - The Insee is the most reliable French institute in the field of data collection and analyses; - Linkage with the SNIIR-AM database and other administrative/tax collection databases. Weaknesses: - limited comparability from one survey to the other due to changes in methodology and the questionnaire: the 1998-2001 and 2008-09 surveys can hardly be considered as two waves of the same survey, and despite increasing comparability, the 2015 survey will be quite different from the 2008-09 one; - data dictionaries and datasets are not available in English.


  • The information about this dataset was compiled by the author:
  • Patrick Peretti-Watel
  • (see Partners)