Joint Programming Initiative

More Years, Better Lives

The Potential and Challenges of Demographic Change

The Danish Cancer Register
Cancerregistret

Topic
Health and Performance
Relevance for this Topic
Country Denmark
URL
More Topics

Governance

Contact information

Statens Serum Institut
The Danish State Serum Institute, SSI
Artillerivej 5
DK-2300 Copehangen S
Austria
Phone: (+45)32683268
Fax: (+45)32683868
Email: serum(at)ssi.dk
Url: www.ssi.dk/.../Cancerregisteret.aspx

Timeliness, transparency

N.A.

Type of data


Registry

Type of Study


Register

Data gathering method

Registries


Access to data

Conditions of access


Researchers can gain access to the database through Statistics Denmark. SSI transfers data to Statistics Denmark once a year.


Permission to use the Danish Register of Medicinal Product Statistics has to be requested from the Danish Data Protection Agency. This will extend the application process by 1-2 months.


Anonymised microdata


SAS


Documentation is only available in Danish.


Coverage


The register collects data annually and it covers all Danish citizens who have been diagnosed with cancer.


1987 - before that it was not compulsory to report


Information on the entire Danish population.


N.A.


N.A.


N.A.


Register covers all Danes with a cancer diagnosis.


Covers health


A report that describes, i.e. data quality, is available in Danish at www.ssi.dk/.../...20%20metode%20og%20kvalitet.ashx


Linkage


Diagnoses


Data from the Register of Medicinal Product Statistics can be linked to other register data available at Statistics Denmark through an encrypted identification key.


Data quality


N.A.


After automatic cross-checks against other registers, manual assessments of 10-20 percent of the cancer reports are performed. Sometimes it is necessary to contact the reporting entity to verify the illness. Including information from the pathology register contributes to the virtual completeness of the Cancer Register.


N.A.


Applicability


Strengths: This registry provides virtually complete coverage due to thorough data validation procedures and cross-checks with other registers. Weaknesses: No official documentation is available in English at www.ssi.dk.


  • The information about this dataset was compiled by the author:
  • Chantal Nielsen
  • (see Partners)