Joint Programming Initiative

More Years, Better Lives

The Potential and Challenges of Demographic Change

The Danish Diabetes Registry (NDR)
Diabetesregistret

Topic
Health and Performance
Relevance for this Topic
Country Denmark
URL
More Topics

Governance

Contact information

Statens Serum Institut
The Danish State Serum Institute, SSI
Artillerivej 5
DK-2300 Copehangen S
Denmark
Phone: (+45)32683268
Fax: (+45)32683868
Email: serum(at)ssi.dk
Url: www.ssi.dk/.../Diabetesregisteret.aspx

Timeliness, transparency

N.A.

Type of data


Registry

Type of Study


Registry

Data gathering method

Registries


Access to data

Conditions of access


Researchers can gain access to the database through Statistics Denmark. SSI transfers data to Statistics Denmark once a year.


Permission to use the Danish Register of Medicinal Product Statistics has to be requested from the Danish Data Protection Agency. This will extend the application process by 1-2 months.


Anonymised microdata


SAS


Documentation only available in Danish.


Coverage


The registry collects data annually and it covers all Danish citizens who have been diagnosed with diabetes.


1997


Information on the entire Danish population.


N.A.


N.A.


N.A.


Includes diabetics that have not (yet) been in contact with the hospital sector, but only their general practitioner. This is done by using indicators created from other registers.


Covers health


Description of the register and i.e. variable list is available in Danish at www.ssi.dk/.../Diabetesregisteret.aspx


Linkage


Diagnoses


Data from the Register of Medicinal Product Statistics can be linked to other register data available at Statistics Denmark through an encrypted identification key.


Data quality


N.A.


N.A.


N.A.


Applicability


Strength: This registry provides virtually complete coverage of diabetics, which enables research into other illnesses and the social gradient related to diabetes. Weaknesses: It does have a limited number of variables, e.g. no variable indicating type of diabetes, and there are no official documentation available in English at www.ssi.dk


  • The information about this dataset was compiled by the author:
  • Chantal Nielsen
  • (see Partners)