Joint Programming Initiative

More Years, Better Lives

The Potential and Challenges of Demographic Change

Austrian Cancer Registry
Österreichische Krebsregister

Topic
Health and Performance
Relevance for this Topic
Country Austria
URL
More Topics

Governance

Contact information

Nadine Zielonke and Monika Hackl
Statistik Austria
Guglgasse 13
1110 Vienna
Austria
Phone: Nadine Zielonke: +431711287228/ Monika Hackl: +431711287533
Email: nadine.zielonke(at)statistik.gv.at; monika.hackl(at)statistik.gv.at
Url: statcube.at/.../login.do

Timeliness, transparency

Reports are published annually for the previous year's data.

Type of data


Other, please specify

Type of Study


Registry

Data gathering method

Registries


Access to data

Conditions of access


Access to patient-level microdata is available by formal request only, fees may apply.


Anonymised microdata (by request); aggregate tables available to the public online


The reports are available only in German and the aggregate tables are available in English and German.


Coverage


Data collection ongoing since 1983 (30 years). Each year (wave), the sample includes all new cases of cancer in the Austrian population for that year: approx. 6,000-38,000 per year.


1983 marked the first year the data was of sufficient completeness and quality (cancer registry first established in 1969, but online registry provides data since 1983).


The register receives its information from cancer registration forms completed by all institutions obligated to report this information and from cause of death statistics.


All of the following institutions at all national, regional, and local levels in Austria are required to participate in the registry: Hospitals, Investigative bodies for the early detection of cancers, Institutes of Pathological Anatomy, Institutes of Forensic Medicine.


No age range specified


Patients treated exclusively in outpatient facilities are not included in the registry. In some states (Bundesländer), cancer incidence is underreported, making intra-state comparisons unreliable. Austrian residents who seek care exclusively abroad are not included in the registry.


Data collected on: Personal information, hospitalization, information about tumor (type, localisation, histology, stage of tumor), diagnosis, treatment, anamnestic data, if cancer is suspected to have developed due to occupation. Corresponds to Health and Performance Topic


• "Austria's Statistical Yearbook, 2013" (Statistisches Jahrbuch Österreichs, 2013) • "Cancer incidence and cancer mortality in Austria, 2010" (Krebsinzidenz und Krebsmortalität in Österreich 2010)


Linkage


ICD-O-3 (International Classification of Diseases for Oncology, Version 3) ICD-10 (for publication purposes only: allows for better comparison with mortality data)


This register is linked to the National Cause of Death statistics (Todesursachenstatistik) since 1983. It follows international and European recommendations for cancer incidence reporting, so it should be possible to link data to cross-national database, but this is not explicitly stated.


Data quality


For each cancer registration form completed, the patient identfier field, localisation, and date of diagnosis are mandatory. Other missing fields are accepted. Measurement error (data capture error) is minimised by a two-stage plausability test.


No breaks reported


No inconsistencies in terminology or coding reported


Applicability


Strengths: The registry is comprised of country-wide statistics on patient hospital discharges and data submission is mandatory by law, ensuring a high level of coverage. The data is internationally comparable and is linked to the Austrian Cause of Death Statistics (Todesursachen). Weaknesses: Data is only as accurate and complete as each hospital's records, and data received by Statistik Austria depends on how forthcoming the individual state (Bundesländer) registries are in submitting data. Patients treated in outpatient facilities are not included in the registry (though this should not be statistically significant as the majority of cancer patients go to the hospital at some point for diagnosis or treatment).


  • The information about this dataset was compiled by the author:
  • Maria M. Hofmarcher
  • (see Partners)