Joint Programming Initiative

More Years, Better Lives

The Potential and Challenges of Demographic Change

AVOHILMO register
AVOHILMO

Topic
Health and Performance
Relevance for this Topic
Country Finland
More Topics

Governance

Contact information

Hanna Rautiainen
THL
P.O. Box 30
FI-00271 Helsinki
Finland
Phone: +358 29 524 6000
Email: hanna.rautiainen@thl.fi

Timeliness, transparency


Type of data


Registry

Type of Study


Data are collected on an annual basis.

Data gathering method

Registries


Access to data

Conditions of access


Data linkage is allowed provided that the researcher has received permission from the authorities (THL).


Register data


SAS


Coverage


Data are collected on an annual basis since 2011.


2011


Registry


AVOHILMO register (THL) provides data for all patient encounters within the publicly provided primary care (primary health care centers) in Finland since 2011. Avohilmo register contains data on: ·         anonymised patient level data per hospital stay (sex, age, place of residence, type of visit/patient contact) ·         medical data on hospital stay (major and additional diagnoses according to ICD-10 standards, procedures/treatments) ·         points awarded per hospital stay based on DRG system ·         DRG codes per hospital


Linkage


Individual level data can be linked using the unique and national personal identification code. However, linkage requires substantial justification on behalf of researchers due to data protection protocols.


Data quality


The data quality may be poor since the development and use are at an early stage.


The data quality may be poor since the development and use are at an early stage.


The data quality may be poor since the development and use are at an early stage. There are large variation in the diagnosis coding.


Applicability


Each data item refers to one outpatient contact. Distinct patients having multiple contacts can be distinguished.  Linkage possibilities to other national registers using the unique personal identification is a major strength. However, the data contents in the minimum dataset are fairly limited, clinical parameters, health behaviour data and other crucial risk adjustment measures are missing.


  • The information about this dataset was compiled by the author:
  • Pasi Moisio
  • (see Partners)