Joint Programming Initiative

More Years, Better Lives

The Potential and Challenges of Demographic Change

Care and social services for the elderly and for persons with impairments
Registret över socialtjänstinsatser till äldre och personer med funktionsnedsättning

Topic
Social Systems and Welfare
Health and Performance
Relevance for this Topic
Country Sweden
URL
More Topics

Governance

Contact information

Lina Boberg
SNBHW (Swedish National Board of Health and Welfare)
Rålambsvägen 3
11259 Stockholm
Sweden
Phone: +46-75-247 38 57
Fax: +46-75–247 32 52
Email: lina.boberg(at)socialstyrelsen.se
Url: www.socialstyrelsen.se/.../inenglish

Timeliness, transparency

Depends. Usually six months from the measured day.

Type of data


Registry

Type of Study

Cohort study

Data gathering method

Registries

Type of data


Registry

Type of Study

Cohort study

Data gathering method

Registries


Access to data


Downloaded files. This register is open to both health and social policy sectors as well as to research. Data is only available after specific application and decision of approval taken by the SNBHW.

Conditions of access


The requested information is released only after the confidentiality agreement/confidentiality clause is regulated by SNBHW. The agency will charge 960 SEK (excluding VAT) per hour for the hours spent on an order. This applies to both assessing of data security and data distribution.


Depends on the type of request. Generally two months, but it could take longer time due to temporary overload of applications.


Anonymised microdata, aggregated tables on request


Primarily SAS, SPSS, Excel and texts (and others on request).


Data is mainly available in Swedish, but could be translated. General information on the dataset in English is available.

Access to data


Downloaded files. This register is open to both health and social policy sectors as well as to research. Data is only available after specific application and decision of approval taken by the SNBHW.

Conditions of access


The requested information is released only after the confidentiality agreement/confidentiality clause is regulated by SNBHW. The agency will charge 960 SEK (excluding VAT) per hour for the hours spent on an order. This applies to both assessing of data security and data distribution.


Depends on the type of request. Generally two months, but it could take longer time due to temporary overload of applications.


Anonymised microdata, aggregated tables on request


Primarily SAS, SPSS, Excel and texts (and others on request).


Data is mainly available in Swedish, but could be translated. General information on the dataset in English is available.


Coverage


The register contains information on the scope of certain municipal services in accordance with the Social Services Act (2001:453) provided for elderly and persons with functional impairments. The statistics, which are part of the official statistics of Sweden, are based on individual data (including consumers’ national registration numbers) which were gathered in 2007 for the first time. The information shown in the report is shown by municipality, county and for the country as a whole.


2007


Covers the whole country and the specific population


Registry of all individuals (the elderly/functionally impaired) getting some form of social support (see below)


The whole country


No restrictions, all ages are covered


Only groups receiving social services etc


In summary, the register includes the following information: • Individuals who live permanently in special forms of housing • Individuals in ordinary housing who were granted home help • Individuals in ordinary housing who had a decision on assistance for home help services • Individuals who had decisions on assistance for short-term care • Individuals who had decisions on assistance for daytime activities • Individuals who had decisions on assistance for living support


www.socialstyrelsen.se/.../socialtjanstinsatsertillaldreochpersonermedfunktionsnedsattning

Coverage


The register contains information on the scope of certain municipal services in accordance with the Social Services Act (2001:453) provided for elderly and persons with functional impairments. The statistics, which are part of the official statistics of Sweden, are based on individual data (including consumers’ national registration numbers) which were gathered in 2007 for the first time. The information shown in the report is shown by municipality, county and for the country as a whole.


2007


Covers the whole country and the specific population


Registry of all individuals (the elderly/functionally impaired) getting some form of social support (see below)


The whole country


No restrictions, all ages are covered


Only groups receiving social services etc


In summary, the register includes the following information: • Individuals who live permanently in special forms of housing • Individuals in ordinary housing who were granted home help • Individuals in ordinary housing who had a decision on assistance for home help services • Individuals who had decisions on assistance for short-term care • Individuals who had decisions on assistance for daytime activities • Individuals who had decisions on assistance for living support


www.socialstyrelsen.se/.../socialtjanstinsatsertillaldreochpersonermedfunktionsnedsattning


Linkage


The International Classification of Diseases ICD is a statistical classification with diagnostic codes for grouping diseases and causes of death in order to make the limited statistical summaries and analyzes. The Swedish version is called ICD-10-SE.


Good opportunities to combine with other Swedish registries on social care and assistance for the elderly, hospital care or drug use. Also a number of registries monitored by Statistics Sweden on living conditions, work and income, social insurance etc. One such example is a study of old citizens most in need of help, where NBHW draws data from • The SOL-register and • National Patient Register • Prescribed Drug Register • National quality register for stroke care, National Stroke • National Quality Register for hip fracture patients and their treatment-Rikshöft and • The Swedish National study on Aging and Care in Kungsholmen: SNAC-K. A population survey of residents in central Stockholm. See: Socialstyrelsen (2013) Registeranalyser av de mest sjuka äldres vård och omsorg. Register analysis of the medical and social care for the most sick old citizens (In Swedish only) This report describes the National Board of the sickest situation of older people using data from health data and social registers, quality register on hip fractures and National Stroke, the dataset SNAC-K and the study on elderly’s perception of the aging care

Linkage


The International Classification of Diseases ICD is a statistical classification with diagnostic codes for grouping diseases and causes of death in order to make the limited statistical summaries and analyzes. The Swedish version is called ICD-10-SE.


Good opportunities to combine with other Swedish registries on social care and assistance for the elderly, hospital care or drug use. Also a number of registries monitored by Statistics Sweden on living conditions, work and income, social insurance etc. One such example is a study of old citizens most in need of help, where NBHW draws data from • The SOL-register and • National Patient Register • Prescribed Drug Register • National quality register for stroke care, National Stroke • National Quality Register for hip fracture patients and their treatment-Rikshöft and • The Swedish National study on Aging and Care in Kungsholmen: SNAC-K. A population survey of residents in central Stockholm. See: Socialstyrelsen (2013) Registeranalyser av de mest sjuka äldres vård och omsorg. Register analysis of the medical and social care for the most sick old citizens (In Swedish only) This report describes the National Board of the sickest situation of older people using data from health data and social registers, quality register on hip fractures and National Stroke, the dataset SNAC-K and the study on elderly’s perception of the aging care


Data quality


The quality of the register of social services for the elderly and people with disabilities is good. All municipalities reporting data. Partial non-response can be in the form of single people and their contributions are not included in the reporting. The extent of this error is unknown. The reliability and the statistical quality of the data collected can vary between municipalities. The quality is associated with the local IT systems and how the various actions defined. Approved number of home care hours may not always be as certain municipalities instead take aid decisions on a certain level of care. In those cases indicated an estimated number of home help hours instead making the variable something delicate.


Since the registry's creation can compare data for all years between 2007 and 2012 except for 2009. The measurement points vary slightly for the different years. Since 2013 data are as of the last day of the month for each month as well as data on changes during the month.


Since the registry's creation one can compare data for all years between 2007 and 2012 except for 2009. The measurement points varies slightly for the different years. Since 2013 data are as of the last day of the month for each month as well as data on changes during the month. Since 2013, the figures relate solely to decisions that have resulted in provision of care.

Data quality


The quality of the register of social services for the elderly and people with disabilities is good. All municipalities reporting data. Partial non-response can be in the form of single people and their contributions are not included in the reporting. The extent of this error is unknown. The reliability and the statistical quality of the data collected can vary between municipalities. The quality is associated with the local IT systems and how the various actions defined. Approved number of home care hours may not always be as certain municipalities instead take aid decisions on a certain level of care. In those cases indicated an estimated number of home help hours instead making the variable something delicate.


Since the registry's creation can compare data for all years between 2007 and 2012 except for 2009. The measurement points vary slightly for the different years. Since 2013 data are as of the last day of the month for each month as well as data on changes during the month.


Since the registry's creation one can compare data for all years between 2007 and 2012 except for 2009. The measurement points varies slightly for the different years. Since 2013 data are as of the last day of the month for each month as well as data on changes during the month. Since 2013, the figures relate solely to decisions that have resulted in provision of care.


Applicability


Strengths This registry gives an overview of profile and trends in public support in the form of social services to the elderly or to individuals with functional impairments. Weaknesses All municipalities are reporting data. Partial non-response can be in the form of single people and their contributions are not included in the reporting. The extent of this error is unknown.

Applicability


Strengths This registry gives an overview of profile and trends in public support in the form of social services to the elderly or to individuals with functional impairments. Weaknesses All municipalities are reporting data. Partial non-response can be in the form of single people and their contributions are not included in the reporting. The extent of this error is unknown.


  • The information about this dataset was compiled by the author:
  • Kenneth Abrahamsson
  • (see Partners)